Here are the services and resources related to this topic.
Easy read patient information leaflets on a variety of conditions and medications can be accessed via the EasyHealth website.
The Royal College of Psychiatrists also has resources and leaflets available for people with learning disabilities in easy read format and for their carers and clinicians. This includes information about capacity and consent.
STOMP and STAMP are initiatives to stop over medication and support appropriate treatment in children with learning disabilities. This leaflet provides information on STOMP and STAMP to help families become more involved in discussion regarding psychotropic medication.
NHS England has produced a series of leaflets to help families and carers of people with a learning disability know the signs of constipation, which can have fatal consequences more often in this group than in the population as a whole, and what to do if you think someone is constipated.
How to Prepare Your Patient for a Hospital Visit
- Ask the patient's carer to fill in a Hospital Passport for them to take into hospital
- Encourage the patient to watch UCLH's videos prior to their visit
- Print off/encourage the patient to read the relevant easy read leaflets below:
Going to hospital (PDF)
Going to A&E (PDF)
How to get the help you need in hospital (PDF)
Having an X-ray (PDF)
Having a scan (PDF)
Having a general anaesthetic (PDF)
Reporting the Death of a Person With a Learning Disability
The Learning Disabilities Mortality Review (LeDeR) is a national review of deaths of people with learning disabilities. Please use this website to report a death of patient with learning disability who was aged more than four years old.